This is five month old Conner who is fighting for his life with a
rare
disease called Hemophagocytic Lymphohistrocytosis or HLH.
Little Conner has recently been diagnosed with this rare disease
and is
currently undergoing chemotherapy at Children's Hospital in Ontario,
Canada.
He will receive chemo for six month, at which time we pray the HLH
will
go into a remission stage. If remission is established, then little
Conner
will need a bone marrow transplant. This is
where YOU can help.
Little Conner's family needs people to be
tested for donor matches.
This is a simple blood test. A tube of blood
is drawn and the proteins (antigens)
in the blood are matched to the patient. It
does not have to be a
perfect match to find a donor, but the closer
the better.
The information I have researched tells me that if YOU are the match
for Conner,
the bone marrow can be collected from where you are and flown to
Ontario.
If you wish to find out more about about being tested or about bone
marrow
or other transplants, you can call the Division of Bone Marrow and
Transplantation of the Health Services and Resources Administration at
301-443-7577.
Or click the link below for the National Donor Marrow Program
YOU CAN HELP THIS CHILD HAVE A CHANCE FOR
LIFE
If you want more information or wish to be placed on a list for
testing, please
contact Conner's grandmother who is a dear friend of mine, her email
address is
conners_grandma@yahoo.com
For more information about HLH see site below
http://www.histio.org/us/lib/hlh-fhl.html
For more information about becoming a donor see link below
National Donor Marrow Program http://www.marrow.org
If you feel you can not help as a donor, please
pass this page along to everyone
you know and please say a prayer for this little
boy. His family thanks you for
taking the time to read this, but please help
if you can. God bless you.